Mood:  mischievious

I won Number 55 today. This Aloha Award It is hard to get. They

don't even give out one  a year. It is another international award. I

moved over 3 pages of my blog so far.

Mood:  party time!

I am moving my blog over to another blog provider. My page

 is staying here. I do not experience problems with it. Just the

blog. It has gone down so many times. It takes me an hour to

fix the errors and blog. I made the  new  blog. I started moving

every post over. I can’t leave any. The past 3 weeks were

getting worse. That black line was not esthetics at first. That

was error I had to run with to make it look good. I chose the

same blogger as Glen form At Risk blog. Hope it works. I will

post here until I get everything transferred over. I was so

 healthy yesterday. I just tripped again. My meds are

working. There is no anger or irrational thinking anymore. I

am stable. I have been having the panic attacks again. We

need more tic tacs. Follow your heart when it comes to HD.

Got a dream? Got a goal. We are thinking of going to the

Queen Charlotte Islands. We were watching a show and

wanted to go worse I always wanted to travel. I have not been

anywhere until I met my Hubby. Never seen the ocean.  My

dream. Figure out yours. Motivate yourself. Have fun. Smile.

Anything is possible. Set your goals. Live them out. Have fun.

Mood:  incredulous

I now take donations on my site. I have a link that leads to the

Canadian HD Chapter. I need to help us get money around

the HD May Awareness Month. I will be keeping it

permanently. A lot of people wander in here to see my

awards. They have to learn about HD now too. If they want to

donate there is now a  way. I am looking in to selling 

 Amaryllis lily’s. Creston is full of them in all of the flower

shops. People love flowers here. I have never done it before.

This will be my first time. I see them all over the place here. I

know a lot of my good friends would buy some. My landlord’s

have HD in their family too. Yesterday  we made a good stir

fry. It was my creation. No recipe or anything.  I have a habit

of my arm falling asleep while I sleep. I yelled for Trevor I

was in so much pain. I could not move my arm for ten

minutes. Ouch. Yesterday I was really sick.  I have noticed in

the morning I am HD free. Then I get sicker. I keep waking up.

I think I might need sleeping pills. This Serquil gives me

energy. It makes me wake up a lot too. Last night I woke up 4

times. Live your life the  way  you  want to. Never let HD rule

your life. That is yours. That is mine. I will not let HD take

away my dreams and goals. Never give up on yours. It is your

life. Is your life worth fighting for? Yes it is. Everyone of our

lives is worth saving. Never give up on your life. Live. We won’t

Mood:  mischievious

Next month is HD awareness month. A big month for us. My

meds give me major energy. I was used to be sedated.

 Yesterday I was so sick. I was the sickest I have been. Could

hardly walk. Hardly talk. Could  not get into my pajamas. I

burnt my hand. I also fell outside hard and skinned my leg.  

 My Nurses are now worried when I take my baths. They think

that Trevor should be there.  I still think I am fine there.

Whenever I go to fall I still catch myself. Just today is the first

fall. We have the grab bars up. So sick,I have been having

trouble eating. I am trying to eat breakfast. Got an upset

tummy. Yesterday I also had an all hallucination day. Last

night I saw a very scary face in the blind. Another scary color-

visual.  Very scary. Everything looked so real. I am feeling

healthy this morning. I did yesterday morning too. Got really

sick around 4. My brother Gary is back to work. He works two

days a week. He works at an auction mart. He sells cows and

horses. My Dad has convinced me to look for a volunteer job.

There are hard to get though. I would love to volunteer with

animals. They have an animal shelter here. See if I can find

something. My little Lucky. We are the hottest place in

Canada. The past  week. Poor little Lucky. I take the bottle of

water. Shortened his walks. It still gets to him. Love our lives

for what they are for. We have HD. It is a greater reason to

live. A greater reason to hope. A greater life if what we need. 

Fight for that. I try everyday to find that. They purpose for

living. We all can find a reason to fight. A reason to live and

accept HD. Until  we are cured we have this. We have HD.

Everyone knows. When Gary got sick before Dad got him

tested we knew. Since he was 21. We noticed little changes. I

am glad he is back at work. He feels important by working He

was so depressed. I felt bad because I have this website. He

had nothing. Me, this is my work. I don’t get paid. It is good

work. Everyday I get up sick and give everyone here a glimpse

of hope. Every single day non stop. I even had home care give

me time to do this. I will never give up this site or blog. I will

never let home care slow me down. We all need so much

hope. We need it bad. Having this mission adds so much to

my life too. I still feel bad that I did not get this idea sooner. I

think it had right timing. When I first starting have mental

symptoms. Never lose sight of the cures and treatments for

us.

Mood:  mischievious

These are a Bunch of HD Pocasts.

http://www.patientpower.info/listenhealthtopicdetails.asp?showid=HR012308&To

Mood:  mischievious

Two huge breakthroughs here. This will be our year for

breakthroughs. More and more hope comes daily. This is tempoary.

No one needs to die anymore. Plan your future.

'Intrabody' can mop up mutant protein in Huntington's disease model

http://www.eurekalert.org/pub_releases/2008-05/eu-cm052308.php

Mechanism Of Action Of Antibiotic Able To Reduce Neuronal Cell Death In Brain Uncovered

http://www.sciencedaily.com/releases/2008/05/080509145457.htm

Mood:  celebratory

Yesterday my meds got changed. MY HD Physiatrist DR Trew,

sent an email to my Doctor here. Dr Walker. When they put

me on Serqiol, I did not know the rest of his specifactions.

My Docter did not tell my family  either. I was supposed to be

weened off Welbruitin. Along with my Serqiol I am supposed

to take Epival. They were supposed to go together. That is

why the Serqiol did not stop the anger and irantional

thinking. The Epival is supposed to do that. That is what I am

doing now. That keeps me up. I was up at 12 last night. Could

not sleep. I am going to try taking them earlier. I feel

exhausted too. They might have to adjust the Epival. Woke up

at 7 this morning. I am going to change the HD information

page with my new meds. We are hoping they work. My Dad

and Trevor are going to watch me like a hawk. I don’t want to

go to the hospital again. Let’s learn to love our life again. Let’s

learn to accept HD. We are all going to get sicker. Loving our

life means accepting HD. We can’t move on until we accept.

HD is what we are. It is how we chose to fight HD that makes

the difference. Accept HD and find the hope. We have it. Own

it. Own HD it is not going to go away. Until  we are cured.

Shorty. Until then we will have it. Believe me when I say HD is

temporary. We will be cured soon. None of us has to die.