Mood:  mischievious

Thank you George Bush for getting all of the American HD families

the right to not be discrimated against. That is such a

breakthrough. Get any job you want. Nothing stands in your way. No

more discrinmation. I added Trevor and I's Wedding Album. I added

that to the Photos section.

Yesterday I was so, so sick. I was tried. That made it worse. I

almost fell three times. Walking on the balls of my feet. My

chorea was so bad.  The worst HD day I had. I was so

confused. Today I think  it  will be the opposite. Our fridge

broke down two days ago. The Landlords put in a

replacement. A new one is coming though. Lost all of that

food. My Nurses helped me make a yummy meal. When they

came when the Nurses came they expected a barking and

mean dog. They were surprised when they came in. They all

were like he does not bark? No he does not. They thought

that all small dogs bark. Lucky is never mean. Speaking of

dogs. My Dad’s boxer Zena is sick. She has teeth problems.

She chews on the tennis ball fluff. Anyone that has a dog that

uses them stop that now. Trevor’s Dad’s poodle uses them

too. I never want to give up the fight for happiness. The fight

for hope. No one should ever give. HD should never take our

life and fun away. It wants too control us completely. If we

fight then we have a chance. Fight every day. Every way.

Remind yourself of the cure. It is real. It will come. There are

many stage three trails out there. Stems cells I still believe

while be the first. Don’t ever give up hope. This is all real. We

are too nice of people to let lavish in pain forever. We won’t

have to fight when we get cured. We will never have to deal

with HD again. Plan your future. Plan it ever with HD. Never

Mood:  lucky

I have been falling a bit the past few days. Yesterday I was

walking on the balls of my feet. Trevor told me to walk on my

 feet. I think I am coming down with a cold or something. My

 chorea has been so bad. My Nurse Shirley will be here

shortly. I like blogging now before she comes. She is really

 nice. Every morning we do dishes and chat. Then later, we

 make supper. I am going to make some kind of chicken meal.

 Trevor is loving coming home and not to think of making

 meals. This is the real HD. We all get sicker. We are all going

 to get cured. That is the difference. It will happen soon. I

 have the worst time typing and not making spelling

 mistakes. I do everything on Microsoft word. Even my emails

 and everything. I am getting that bad. I will still do this even

 through HD is making my spelling bad. I not worried about

 getting sicker. I write like a Doctor. I have accepted it. I also

 know that we will get cured. Hold on to the knowledge. We

 are too good of people to let this HD happen with no reward.

 Never lose hope in that coming true. We will have our time to

 live. Untill then live with HD. It is temporary. We have to learn

 to live with HD. That should be easier since we are going it

 get cured. Never lose sight of the big picture. We are going to

 all get cured sooner then later. Believe in you life with HD.

Everything will improve. Accept it.

Mood:  mischievious

My computer is acting screwy. Trevor is going to reformat it.

Last night I was scared too. I kept hearing scary things. I

hope my meds are working. I have been really angry lately. I

would unintentionally start shouting at Trevor. Very

irrational. Yesterday I was the sickest I have been. So was

my Lucky. He was so sick yesterday. He started puking. We

think something went down wrong. Poor little Lucky. He is

better today though. Today  will be an HD free day. My Nurses’

are coming over in 15 minutes. What is weird I missed them

They have turned me into a Chef. The last meals I did myself..

We must never lose hope. Ever. That is all that sustains us. All

 that keeps us going. Hope. That one word that can move us.

Hope that we will get cured. It will happen sooner than later.

Never lose your hope. Even when everything gets harder. That

is when it is more important. We need all lot of hope to make

it through the tough days of HD. We need to fight and never

lose sight then. Never ever forget that we are going to get

Mood:  incredulous

I am so sick today. Last night I was so confused. It is carrying

on today too. I have been drooling a lot too. The past three

days it has been getting worse. So has my confusion.

Yesterday I was the healthiest I have been. Not a single thing

happened with HD. Today we went to Cranbrook in the

morning. Poor little Lucky got sick and puked. Tomorrow I

have the Nurses back. Since I have been taking this ensure, I

have gained lots of weight. I no longer look gaunt. Healthier. 

 We need to fight HD. You can’t claim us. You can’t take the joy

out of our lives. We are the ones that need to be joyful. We

fight HD just to get there. Only we know how hard it is. Every

day, To wake up and fight again. We deserve to be happy.

Let’s fight together. Let’s live our life the way we want too. I

won three huge awards today. I was sent three awards from

one person who loved my site. They are hard ones to get too. 

I can’t believe it. Every award I am surprised. I go through

periods where I* don’t get awards. Then they come easily and

 a lot of them. I am glad. More people know about HD because

my site is the most awarded site. People flock in and see

what I am up too. I want people to be aware of HD. I am the

only person that has it that people know. They never even

Mood:  mischievious

Yesterday I was scared. We were walking with my Hubby and

Lucky last night. I heard a bunch of drunk people, they were

no there.  I saw bugs all around last night. Scary... My chorea

is getting so much worse. There will be times when I can’t

control my movements. I had trouble eating last night with

 Trevor. Yesterday was bad HD day. There is a Blossom

festival. In Creston. Today we are going to check out the

midway. That is why that parade was for. Even though we are

getting sicker. We realize this is the way it will be. We will get

 a bit sicker before we get better. We have to know true

darkness (HD) to know true light (without it). This will be a life

 lesson. We are chosen to have HD for a reason. Accept that.

There is also a reason why we will get cured sooner. I never

sit here and think why me? Pity leads me somewhere I do

not want to go. All of you should try to fight. HD makes us

stronger. Makes or breaks our life. Depending on how we

deal. Learn how to love you life. Live you life, Laugh. Plan our

future together with on HD. WE will have our life back soon.

Love HD. Live for you. Live for me. We all have to fight HD.

I made another awards page. the other one was getting full. Still

healthy today. Home support is not coming today. Trevor has three

days off for this weekend. The heat has affected our little Lucky.

Yesterday we were the hottest in Canda. It was plus 30 yesterday. I

took him out for a walk and he stopped moving. I had to carry the

poor little guy home. Learn to love your life. Learn to live your life.

This is all we have. This is our life. We have HD. We can learn to live

beside it. We can live. We just have to fight for our life. Everything

and every day. We can't let go and let HD take over. If we give up, it

will take over our life. Our happiness. That is why we fight. That is

what we can lose.

Mood:  mischievious

 Today there was a parade in Creston. Elyissa and Nefertiti

and I went. It was fun. I have been felling more confused

every day. When doing aerobics. I went to meet Trevor and

went to the wrong restaurant. I am totally losing my mind.

Getting more confused. My chorea is getting worse too. I am

twitching all over. Accept this is HD. It will getting like this

before we are cured. We have to believe and fight towards

hope for our future. Fight every day. We can win. We will cure

you HD. We will fight with our happiness and laughter. We

need to learn to love HD. To live, we need to love HD. We have

to cope. We have to fight. Today I have won my 50 th award.

This is another hard international award.  50 awards in 9

months is unheard of.

Your story can't help but give inspiration and hope to others. 

One of the problems with serious disease is the feeling that

one is fighting it alone.  I suspect your site will help many

people throughout the months and years to come.

I am always surprised when I win these awards. Who knew