Mood:  celebratory

 They are planning a run for the Cure on Septemebr 20. Donate now

or find info.

http://www.runtocurehd.com/

Mood:  energetic

A lot of hope for a new cure. That is amazing. My Mom was right. This

is our year for breakthroughs. Just beleive in cures. Plan your

future.

http://www.hno.harvard.edu/gazette/1999/06.17/huntington.html

Mood:  energetic

Tomorrow is Mother’s Day. I will forever love and cherish my

Mom. When she was alive I brought her flowers on Mother’s

day. No one could replace her in my eyes. She was and is my

Mom. Even though she died when I was seventeen. I was

devistated when she died. We were so close. I loved and

looked after her in the hospital. I missed two weeks of the

first semester of school. Nobody thought I could graduate. I

missed so much in every class. 4 chapters of everything. I

showed them. Graduate with good grades. I finished for my

Mom. When Trevor and I had our wedding I put up a picture of

her on a table, with flowers around it. Everyone was touched.

It got all of them in tears. They told me that my Mom would be

proud of me. Approve of Trevor. I loved her that much. No one

can replace you. She is the one that sent me two dreams on

me getting cured. It will happen soon. I believe my Mom. In

her first dream she told me I had HD. Two days before I got

my results. In the end my Mom would only talk to me.  She felt

 I was her salvation. I made her life that much better. My Mom

had a smile that could bring happiness. She was an amazing

 seamstress. Made all of her own clothes. Her sister too. She

never tried to escape from HD. She was brave. She was my

inspiration in dealing with this. I could only hope to be as

brave as she was. I know she is probably  proud of what I have

done here. I opened an HD door here. One that won’t close.

She was hilarious.  We want future with HD.  We demand

hope. I know she probably would be so happy. I am trying to

 affect change for everyone that comes here.  We do not have

to be unhappy. Not anymore. I did that Mom. She was s my

Mood:  happy

Yesterday at Phsyio he had me do some exercises that would

make my chorea less. It made it worse. Every time I did a set

they got worse. Next time I will need to do stretching and

massage. We went for a walk so he could how bad my chorea

was. I was so confused yesterday. I went to the wrong

apartment building. Thought it was mine. Got confused when

I did the exercises too. Shirley and I made a slow cooker

meal. It was so good. She is going to come at 3:30. We need

time to make dinner. World War Two was the only way I

actually supported. We are happy that Hitler did not take

over the world. I am glad that thanks to the military we can be

free. Let’s enjoy our freedom and our lives. Let’s love all of

ourselves, including the HD. Forgive yourselves for what HD

made you do. It is the disease and not you. It makes you act

that way.  Forgive and love yourself for what you are. I know

how strong everyone is when they have HD. Every day is an

unending fight that we can win. We can be happy. We can be

hopeful. We can be anything we want too. We have to fight

HD. Get the control back. Take our future back. All of that

belongs to us. We need to live.  We need to not give up

everything. We need to get everything back. Take back our

lives. Take them.

Yesterday a new home support worker came over and

helped me make dinner for Trevor. That was yummy stuff. We

made a stir fry. I was so sick the past two days. Really tired

too. Made everything worse. Had a hard time dressing. We

were talking I totally brain fogged out. I was doing aerobics.

Had a horrible toe seizure. They kill me. Today I feel it will be

a relatively HD free day. I have Phsyio today. Every time I go to

see him I am relatively healthy. Imagine that. Yesterday my

little Lucky was having some nightmares. Poor little guy. He

was wimpering and scared while sleeping.Let’s live life

together. This only shot at life we get. Let’s enjoy it. Let’s live

like we have nothing else. Learn to love your life the way it is.

Live like you are dying.  Live and love your life until the cure

comes. Do not give up on yourselves. Do not give up in life. We

have to fight HD. Get control. This is our life HD. Give our

happiness back. Give our hope back. Give our future back too.

Give it all back. We deserve to have a great life. Do not let HD

take that away.Fight with all fo the strength you can muster.

This our happiness HD is trying to take awy. It is these basic

that we are fight so hard for.

Mood:  lucky

Yesterday we went on a hike in the wildlife center here.

Trevor and I took Lucky out there. He loved it. He was so

happy. It was a nice hike. There were lots of animals all over

the place. I saw my first turtles. I love turtles. Last time I went

I missed them. They were so cute. I am planning to climb a

mountain this summer. I am blogging, I am trying to eat. I feel

like I am going to throw up. I am so glad for the ensure. I have

been spilling like crazy. Trevor’s Mom is still going against

us . They are afraid that I well get sick and it would cause

him to get sicker.  We are going to get cured soon. I will never

be that sick. We do not understand why. Since I am off my

Serquil I am back to my old self. Have not got angry and

freaked out. The hallucinations are down too. I have not

gotten much now. Shirley will be here in half an hour. She is

the perfect Nurse for me. We are going to live. My Mom gave

us all of the signs. I think this dream was a reminder.

Remember that. We are so close to getting a cure. This is

what we need. A reminder. Be strong. Live. It will all be worth

it. We can have real tangible breakthroughs. They are

substantial. None of us are going to die anymore. We are all

going tom live together. Cured wholly. Never lose site of the

My home support worker is amazing. She dropped by in the

morning to make sure I took my meds. We did the dishes. She

is really nice. They are givng me lots of time to work on here.

They came at 10:30 in the morning. Then they came back at 4

in the afternoon. We took Lucky for a walk. His leash broke on

that walk. Right where there was a mean dog there. She tried

 to attack him. That was scary. We went to her house to get a

 harness.  Scary. I had that horrible foot spasm last night.

They kill me. I have never been in more pain in my life. I have

been falling a lot lately. I decided to put up all of the articles

that involve my family. I have also been struggle with a

depression for a week now. Yesterday I was brought to tears

I was so upset. We think it is because I know I am that sick

now I am having home supports. Trevor said that I am not that

sick yet. I am feeling better. Whenever I feel this way I listen

to happy music. Watch something on TV. We should never

feed our depression. If we do, we end up nowhere good. Fight

it away. With laughter and smiles. We cannot let it rule our

life. It is natural with HD to feel this way. It is how it works. It

is how we fight it that makes the difference. We deserve to

be happy. We have to fight for it. We have to wake and fight an

unimaginable fight. Every day we wake same thing. Let’s

show our strength. We can fight you HD. We have to fight for

every smile and every laugh. Once we get there it is always

Last night I had another HD prophetic dream, I had a dream

where we all got cured again. It is going to happen soon... So

soon. We can live again. It will not be long and all of my

dreams come true. Never lose hope. We went to Nelson

yesterday. Took Nefertiti and Elissya with us. We took a ride

on the ferry. It was so fun. Went shopping. I love Nelson it is

beauftul.  We took little Lucky with us. The poor little guy got

sick and puked all over me. We know we have a baby now.

Trevor and I would love to live there. Today is my first day of

home support. They will come in an hour. Tell me about my

meds. I am not scared anymore. Excited. I am not going to

stop my blog because I get sicker. I will not give up on you. I

will not give up on your daily hope. I will literally be

incapatceted and still blogging. Every life I save from

desperation and fear keeps me going. We need hope. We all

do. Especially when it comes to HD. We will get cured though.

Both of my dreams say so. No need to be afraid anymore. I

made that Mother’s Day Graphic of my Mom. I loved her  very

much. She is all I think of for this holiday. I would always

bring my Mom flowers. I visited her almost every noon hour.

When she was in the hospital. I made her little games and

word puzzles. I was afraid of her getting bored. I was happy

when I was 16 and got work experience. Worked at the

hospital. I looked after her. Used to call me her salvation. I

found that out at her funeral. I had also played a huge part in

raising my brothers. Scotto is a mini me. Gary was more

rebellious. Whenever I go to see her gravesite that is how I

know we are going to get cured. She told me in the first

dream I had. That I was going to sick and I will be cured

quickly. Now the other one. Our path is set. We can live again.