My home support worker is amazing. She dropped by in the

morning to make sure I took my meds. We did the dishes. She

is really nice. They are givng me lots of time to work on here.

They came at 10:30 in the morning. Then they came back at 4

in the afternoon. We took Lucky for a walk. His leash broke on

that walk. Right where there was a mean dog there. She tried

 to attack him. That was scary. We went to her house to get a

 harness.  Scary. I had that horrible foot spasm last night.

They kill me. I have never been in more pain in my life. I have

been falling a lot lately. I decided to put up all of the articles

that involve my family. I have also been struggle with a

depression for a week now. Yesterday I was brought to tears

I was so upset. We think it is because I know I am that sick

now I am having home supports. Trevor said that I am not that

sick yet. I am feeling better. Whenever I feel this way I listen

to happy music. Watch something on TV. We should never

feed our depression. If we do, we end up nowhere good. Fight

it away. With laughter and smiles. We cannot let it rule our

life. It is natural with HD to feel this way. It is how it works. It

is how we fight it that makes the difference. We deserve to

be happy. We have to fight for it. We have to wake and fight an

unimaginable fight. Every day we wake same thing. Let’s

show our strength. We can fight you HD. We have to fight for

every smile and every laugh. Once we get there it is always

Last night I had another HD prophetic dream, I had a dream

where we all got cured again. It is going to happen soon... So

soon. We can live again. It will not be long and all of my

dreams come true. Never lose hope. We went to Nelson

yesterday. Took Nefertiti and Elissya with us. We took a ride

on the ferry. It was so fun. Went shopping. I love Nelson it is

beauftul.  We took little Lucky with us. The poor little guy got

sick and puked all over me. We know we have a baby now.

Trevor and I would love to live there. Today is my first day of

home support. They will come in an hour. Tell me about my

meds. I am not scared anymore. Excited. I am not going to

stop my blog because I get sicker. I will not give up on you. I

will not give up on your daily hope. I will literally be

incapatceted and still blogging. Every life I save from

desperation and fear keeps me going. We need hope. We all

do. Especially when it comes to HD. We will get cured though.

Both of my dreams say so. No need to be afraid anymore. I

made that Mother’s Day Graphic of my Mom. I loved her  very

much. She is all I think of for this holiday. I would always

bring my Mom flowers. I visited her almost every noon hour.

When she was in the hospital. I made her little games and

word puzzles. I was afraid of her getting bored. I was happy

when I was 16 and got work experience. Worked at the

hospital. I looked after her. Used to call me her salvation. I

found that out at her funeral. I had also played a huge part in

raising my brothers. Scotto is a mini me. Gary was more

rebellious. Whenever I go to see her gravesite that is how I

know we are going to get cured. She told me in the first

dream I had. That I was going to sick and I will be cured

quickly. Now the other one. Our path is set. We can live again.

Mood:  lucky

Today I spent the day with my best friend Elyssa.  Trevor has a new

job. He works at home builders. They have benefits after 3 months

which is good. Today I am having serve brain fog. The past two

nights I was scared. I have been petrified.  Very scared. Today I

have been feeling less HD symptoms. Every day I still do aerobics.

Keep this up. We need to build neurons. Keep running. Keep being

active. The longer we are active the better we are. Everyday I go out

with Lucky and Elyssa everyday with Lucky. He meets lots of dog

friends on his walk. Our little boy. When he was at the Hair Salon.

She said he was a smart dog. All of the other dogs from our breeder

where snippy. He was the best of that breeder. We were Lucky. Keep

up your life. Do not surrender your life. Live your life. Keep on living.

Soon as we give up. HD will claim us. It is so important to fight. We

are fighting life and death here. We are. We could lose our life. If

we do not fight. Use that strength. Fight for your right to be happy. To

Mood:  mischievious

I met with my home support head Nurse today. She seems

nice. I told them that I need time to run this site. I will get it. I

mainly need the med reminder. I usually don’t remember. I

am kind of still a bit scared. I usually am with change. I am

sure I will enjoy the Nurse. Last night I made supper. Yummy.

They start Monday. I accepted I am sick. We will get sicker.

That should not change how we view life. Life is great. Our

future is great. Everything can only get up from here. We can

have real hope know. Real cures. Real breakthroughs. I

believe. There is too much hope for us. Let’s learn to love our

life, ourselves again. Believe in our future. We can get there

easy.  It is not far. We can hold on. We can make it in time. We

can learn to live again. A hundred percent healthy. Right now

we have to deal with HD. Until the cure comes. Hold on. We

don’t have long until we are cured. Fight HD with everything

Mood:  energetic

Tomorrow we get everything sorted out with home support.

On Monday it starts. Today I am really sick. I am so sick. Last

night there was twitching in my leg for a long time. I have bad

chorea. I love spring. I was taking Lucky for a walk. There was

a little kitty in the road. A huge truck was coming. I ran and

saved that cats life. He might have gone and got ran over.

Poor kitty. I chase him off the road. We need to take

everything with passion for life. Passion to fight. Just not

live. Love your life. Live your life. This is all we have. We need

to have unwavering hope for the future. We will get there. We

can live again a hundred percent. Motivate yourself to

greatness in your eyes. We can do anything we want to. I

never let HD get in the way. Fight HD. Loosen its grip on you.

Loosen it. Breathe again. Live again. Just breathe. Your life is

in your hands. Do what you wish. Live your life now. You have

it back.

Mood:  energetic

All of my Doctors are going to have a family conference so

that they can think of ways to help us. Trevor’s Mom is pulling

 away from us. She has been doing it for three months. She

wants Trevor and I to separate. She ditched me in the

hospital. Promised me she would come. My Dad was going to

come and take me home for a bit. She never did.  All we really

have is my Dad right now. When I was hospitalized, that is

when she tried extra hard to part us. When I left I did not

know if I had Trevor to go home to. She is trying to break our

vows. He told me no matter how bad things would get he

would never leave. My Dad is all we have. She went on a trip to

Mexico. Never came back the same. She avoided us. On Friday

I get to talk to a home support worker. We are going to

organize everything. They will give me time to do my site.

They will be here in the morning for meds. We get 5 days a

week free. That is good. With all of these problems. All we

can do is hope. Things have to improve. We have to believe.

Believe in life and being HD free. It is hard to have this

hanging over our heads. We have to cope. I believe that

everything has to get better. Believe in our happiness. In our

joy. In our laughter. Believe in all for the good things that will

come. The good things that have.  All good things will never

die. Hope will never die also. Hope for our future will never

die too. Always have that. Having all of that will help you live.

 I won a  huge award. This is like becoming on the top 100

Disability/ Disease blog list. I did not apply. They found me. This is

huge. I won the Disability Newtook Award. I had no idea I would win

this I am so happy to have won this. I started something positive for

a change. I am being rewarded like crazy. I can win all of this. It all

still about my mission. All of that takes a back seat.  If I have helped

or changed one person lives that is all I need.  Live and love your

life. All of you believe in yourself and you can do anything. When I

do this I don’t question. I just do. I want everyone that comes here to

know that things will get better. There is real hope here. Real hope

for us. We will get cured shortly. I wanted you to have hope for the

first time. Don’t be afraid of HD. It won’t be sick with it long. Just

believe a hundred percent in our future, without HD.  It will come

sooner than later.  We can have our miracles. We will have them.

We will have our lives back. There is o much hope now. Just believe.

Mood:  mischievious

The past three days, I have been healthy again. It is weird for

getting so sick and so healthy. Yesterday I was eating. I saw

bugs in my soup. Very scary. I thought they were real. I have

been falling still. I have been walking around on the back of

my feet sometimes. That is what Trevor says. I did that going

down on stairs. Now I constancy walk. My best friend came

over twice this weekend. She lives downstairs. They are like

or second family. Let’s learn to live again. Let’s learn to hope.

The best is yet to some. The best will come. Never lose sight. I

have already planned my future. I believe a hundred percent

that we will be cured. We get closer and closer. Every day we

do. We will have our lives back. We can live HD free. It gets so

close. Never surrender. Never give up hope. Never give up our

happiness. Our joy. That is something that can help us keep

through HD. We can fight you. We will win soon. You will be no

Mood:  don't ask

I miss my Jenny today. I have really been through the grief gauntlet.

Mood swings and depression. I will make her page soon. Trevor

needs to set up my scanner. Why do they have to take the young

ones? I knew the other boy. He was 14 years old. I see busses on TV

or here. I remember all of the news broadcasts. That is all I see. I

know all of us have seen it. That has traumatized all of us. I am also

happy and sad. She bought her grad dress. They also were planning

a trip to Disney Land when she died. She loved Disney. Everything

about them. I am so glad they left my family alone. Thanks to me.

We both loved animals to no end. She would have been the best

veterinarian ever. I used to babysit her all of the time. She had a

smile that lit us all up.