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Heather Bloggie
Thursday, 5 June 2008
Strength
Mood:  incredulous
Topic: Huntington's Disease

Spent yesterday cleaning with my Nurse Shirley. Made a

 yummy slow cooker meal. I won another award today. It is a 

 Visionary Award. Every one means so much to me. I have two

months of blogs to bring over. It should be done today. I

listen to the HD Prime of life podcast yesterday. I added new

information on HD in the The importance of Testing page.

Also the HD information page. They talked about the study

COHORT. I have been a part of that for 5 years now. I am so

young. My HD is so advanced. I feel I am asset to them. Now I

am the age to do other studies. I tried for years. They needed

someone who was 25. I have been healthy all day yesterday.

I had a night of hallucination terror. I heard someone

breaking in again. I kept seeing things.  This morning I

thought I heard Trevor. He was not there. I feeling more

anxious. Let’s loosen HD’s hold on us. Loosen it. We have the

right to live our lives. We have the right to fight our for lives.

We have the right to believe in our lives. These are our lives.

Give them back to us HD. We are fighting for our lives every

day we get up. Believe in our right for hope. Our right for our

future. This is ours to live in the light. Not in the dark. Or

denile. Be strong with me. Fight beside me.


Posted by heatherdugdale at 11:52 AM EDT
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