Open Community
Post to this Blog
« May 2008 »
S M T W T F S
1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30 31


 
 
Heather Bloggie
Friday, 30 May 2008
Hope Flows
Mood:  mischievious
Topic: Huntington's Disease

Next month is HD awareness month. A big month for us. My

meds give me major energy. I was used to be sedated.

 Yesterday I was so sick. I was the sickest I have been. Could

hardly walk. Hardly talk. Could  not get into my pajamas. I

burnt my hand. I also fell outside hard and skinned my leg.  

 My Nurses are now worried when I take my baths. They think

that Trevor should be there.  I still think I am fine there.

Whenever I go to fall I still catch myself. Just today is the first

fall. We have the grab bars up. So sick,I have been having

trouble eating. I am trying to eat breakfast. Got an upset

tummy. Yesterday I also had an all hallucination day. Last

night I saw a very scary face in the blind. Another scary color-

visual.  Very scary. Everything looked so real. I am feeling

healthy this morning. I did yesterday morning too. Got really

sick around 4. My brother Gary is back to work. He works two

days a week. He works at an auction mart. He sells cows and

horses. My Dad has convinced me to look for a volunteer job.

There are hard to get though. I would love to volunteer with

animals. They have an animal shelter here. See if I can find

something. My little Lucky. We are the hottest place in

Canada. The past  week. Poor little Lucky. I take the bottle of

water. Shortened his walks. It still gets to him. Love our lives

for what they are for. We have HD. It is a greater reason to

live. A greater reason to hope. A greater life if what we need. 

Fight for that. I try everyday to find that. They purpose for

living. We all can find a reason to fight. A reason to live and

accept HD. Until  we are cured we have this. We have HD.

Everyone knows. When Gary got sick before Dad got him

tested we knew. Since he was 21. We noticed little changes. I

am glad he is back at work. He feels important by working He

was so depressed. I felt bad because I have this website. He

had nothing. Me, this is my work. I don’t get paid. It is good

work. Everyday I get up sick and give everyone here a glimpse

of hope. Every single day non stop. I even had home care give

me time to do this. I will never give up this site or blog. I will

never let home care slow me down. We all need so much

hope. We need it bad. Having this mission adds so much to

my life too. I still feel bad that I did not get this idea sooner. I

think it had right timing. When I first starting have mental

symptoms. Never lose sight of the cures and treatments for

us.


Posted by heatherdugdale at 12:38 PM EDT
Updated: Friday, 30 May 2008 12:42 PM EDT
Post Comment | Permalink | Share This Post

View Latest Entries