Mood:  celebratory

Yesterday my meds got changed. MY HD Physiatrist DR Trew,

sent an email to my Doctor here. Dr Walker. When they put

me on Serqiol, I did not know the rest of his specifactions.

My Docter did not tell my family  either. I was supposed to be

weened off Welbruitin. Along with my Serqiol I am supposed

to take Epival. They were supposed to go together. That is

why the Serqiol did not stop the anger and irantional

thinking. The Epival is supposed to do that. That is what I am

doing now. That keeps me up. I was up at 12 last night. Could

not sleep. I am going to try taking them earlier. I feel

exhausted too. They might have to adjust the Epival. Woke up

at 7 this morning. I am going to change the HD information

page with my new meds. We are hoping they work. My Dad

and Trevor are going to watch me like a hawk. I don’t want to

go to the hospital again. Let’s learn to love our life again. Let’s

learn to accept HD. We are all going to get sicker. Loving our

life means accepting HD. We can’t move on until we accept.

HD is what we are. It is how we chose to fight HD that makes

the difference. Accept HD and find the hope. We have it. Own

it. Own HD it is not going to go away. Until  we are cured.

Shorty. Until then we will have it. Believe me when I say HD is

temporary. We will be cured soon. None of us has to die.