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Heather Bloggie
Tuesday, 27 May 2008
Grab bars
Mood:  surprised
Topic: Huntington's Disease

Today I have the day off. Trevor is here.  On the days off, I don’t

have to cook. We had the Occupational Therapist come on.

She put bathroom bars in today. I have  hard to me getting

into the tub. We are getting more put in two weeks from now.

Trevor is getting burnt out. His new job will not let him have

respite time. He is working ten hour days. Two jobs. He has to

wait three months until that will happen. Horrible. Yesterday

I fell hard. The family meeting will happen July 4th.The


 


phone conference with my family there and the doctors

in Calgary and here. We are making appointments to see my

 Doctors soon in Calgary. We have a new social worker.

Trevor has sent her emails with no reply. No idea about that. I

loved Loretta so much. Our old one. Said we can still pop by

the hospital and see her.  We have to appreciate our life. We

can have a good life. We have to make it. Plan you dreams.

Make some goals. I still want to see the ocean. If you make

plans you have a reason to get up and live. I want to run this

until I  am incapacted.  Give yourself a reason to live. Goals

and dreams will help you achieve that. If you are sick it is

more important. We need just only one reason to live for.

Make it for yourself. This is all we need. Plan and live. Plan

and love. Plan to forgive. Plan you life with out HD.


Posted by heatherdugdale at 4:03 PM EDT
Updated: Tuesday, 27 May 2008 4:26 PM EDT
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